Sexual Health

Addressing sexual health among patients with immune-mediated inflammatory diseases.

TL;DR

Having several immune-mediated inflammatory diseases (IMIDs) was associated with a greater impact on sexual health, with participants with multiple IMIDs reporting a higher prevalence of difficulties than those with only one IMID.

Key Findings

Having multiple IMIDs was associated with greater impact on sexual health compared to having a single IMID.

  • Participants with multiple IMIDs reported a higher prevalence of difficulties than those with only one IMID
  • The study included 142 participants total
  • Diseases studied included psoriasis, hidradenitis suppurativa, psoriatic arthritis, axial spondyloarthritis, Crohn's disease, and/or ulcerative colitis
  • Participants were recruited consecutively from outpatient clinics

Sexual health difficulties in IMID patients encompassed both disease-related challenges and difficulties in interactions with intimate partners and health professionals.

  • The study investigated how intimacy and sexual health were affected in patients with IMIDs
  • Knowledge was generated on disease-related difficulties as well as patients' interactions with intimate partners and health professionals
  • A mixed-methods model was used combining quantitative and qualitative approaches to leverage the strengths of each methodology

There is an identified need to optimize communication and support regarding intimacy and sexual health within healthcare settings, particularly for patients with multiple IMIDs.

  • The study highlighted gaps in healthcare communication around sexual health for IMID patients
  • The need was described as especially acute for patients with multiple IMIDs
  • Sexual health is described in the paper as 'fundamental to overall health and wellbeing'
  • The finding emerged from a mixed-methods study of 142 participants attending outpatient clinics

Patients with immune-mediated inflammatory diseases attending outpatient clinics experienced undermined sexual health related to their conditions.

  • Six specific IMIDs were studied: psoriasis, hidradenitis suppurativa, psoriatic arthritis, axial spondyloarthritis, Crohn's disease, and ulcerative colitis
  • Patients were recruited consecutively from outpatient clinics
  • The study used a mixed-methods model combining quantitative and qualitative approaches
  • Total sample size was 142 participants

What This Means

This research suggests that people living with immune-mediated inflammatory diseases (IMIDs) — a group of conditions including psoriasis, hidradenitis suppurativa, psoriatic arthritis, axial spondyloarthritis, Crohn's disease, and ulcerative colitis — frequently experience negative effects on their sexual health and intimate relationships. The study recruited 142 patients from outpatient clinics and used both surveys and in-depth interviews to understand how these diseases affect intimacy and sexual wellbeing, as well as how patients communicate about these issues with their partners and healthcare providers. A key finding was that patients dealing with more than one of these conditions at the same time reported more sexual health difficulties than those with just one condition. This suggests that the burden on sexual wellbeing compounds as the number of diagnoses increases, pointing to a particularly vulnerable group that may need additional support. This research suggests there is a significant gap in how healthcare settings address sexual health for people with these chronic inflammatory conditions. Patients may not be receiving adequate communication or support around intimacy and sexual health from their healthcare teams, particularly those managing multiple diagnoses. The authors conclude that improving how clinicians engage with patients on these sensitive topics could be an important step toward more holistic care for people living with IMIDs.

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Citation

Møller L, Edelbo R, Bager P. (2025). Addressing sexual health among patients with immune-mediated inflammatory diseases.. British journal of nursing (Mark Allen Publishing). https://doi.org/10.12968/bjon.2023.0271