Sleep

Co-Design of a Sleep Improvement Intervention for Persons Living With Dementia Boarding in the Emergency Department.

TL;DR

Through participatory co-design, multilevel strategies were identified to improve sleep for persons living with dementia boarding in the ED, including reducing environmental stimulation, integrating familiar routines, and enhancing staff dementia training to mitigate sleep disruption and delirium risk.

Key Findings

The emergency department environment was characterized by participants as fundamentally disruptive to sleep for persons living with dementia.

  • Participants described the ED as 'a noisy, brightly lit, and disruptive environment that undermines sleep'
  • This emerged as one of three overarching domains: 'current practices'
  • Participants included ED nurses, technicians, caregivers of PLWD, and community advisors
  • Study was conducted across two Massachusetts EDs, a post-acute rehabilitation facility, and a community advisory board

Stakeholders identified multiple potential non-pharmacologic strategies to promote sleep for persons living with dementia boarding in the ED.

  • Suggested solutions included structured nighttime routines and clustering of care tasks
  • Noise and light reduction strategies were proposed
  • Delirium carts offering non-pharmacologic interventions were suggested
  • Greater caregiver involvement was identified as a potential strategy
  • These findings emerged from the second overarching domain: 'potential solutions'

Multiple barriers to implementing sleep interventions in the ED were identified, alongside key facilitators.

  • Barriers included staffing constraints and lack of dementia-specific training
  • The need for local 'champions' to sustain interventions was emphasized
  • These findings comprised the third overarching domain: 'barriers and facilitators'
  • Analysis was informed by the Consolidated Framework for Implementation Research (CFIR)

Community advisors emphasized individualized, caregiver-inclusive approaches to sleep interventions for persons living with dementia.

  • Community advisors stressed 'tailoring approaches to individual patient needs'
  • Involving caregivers in decision-making was highlighted as a priority by community advisors
  • Eight of 26 total participants were community advisors
  • Three caregivers of PLWD also contributed perspectives

A total of 26 participants across multiple stakeholder groups contributed to the co-design study.

  • The 26 participants included 15 ED clinicians, 3 caregivers, and 8 community advisors
  • ED clinicians included nurses and technicians
  • Participants were recruited from two Massachusetts EDs, a post-acute rehabilitation facility, and a community advisory board
  • Data collection methods included semi-structured interviews and focus groups
  • Transcripts were analyzed thematically using 'a combined inductive-deductive approach'

Sleep disruption in the ED may heighten delirium risk in persons living with dementia, motivating the need for targeted interventions.

  • PLWD 'frequently experience prolonged stays in the emergency department, an environment poorly suited to their complex needs'
  • Sleep disruption in this setting 'may heighten delirium risk'
  • Inpatient sleep interventions 'show promise' but 'their adaptation to the ED remains unexplored'
  • This gap in the literature provided the rationale for the co-design approach

What This Means

This research suggests that emergency departments (EDs) are poorly suited for people living with dementia who must stay overnight, particularly because the noisy, brightly lit, and constantly active environment disrupts sleep and may increase the risk of delirium — a state of sudden confusion that can be dangerous for this population. Researchers used a 'co-design' approach, meaning they worked directly with ED nurses, technicians, caregivers of people with dementia, and community advisors to identify the problems and brainstorm solutions together, rather than designing an intervention without input from those affected. The study found that practical strategies could include dimming lights and reducing noise at night, grouping medical tasks together so patients are disturbed less frequently, establishing familiar bedtime routines, providing 'delirium carts' stocked with non-drug comfort items, and involving family caregivers more actively in nighttime care. However, participants also flagged real-world obstacles, such as limited staffing, insufficient training in dementia care among ED staff, and the need for dedicated staff 'champions' who would take ownership of keeping these practices going. Community advisors particularly emphasized that approaches need to be tailored to individual patients and that caregivers should have a meaningful role in decision-making. This research matters because people with dementia are a vulnerable group who often spend extended periods in emergency departments waiting for hospital beds, yet very little has been done to adapt the ED environment to their specific needs. The findings lay groundwork for developing and testing a practical sleep intervention in the ED setting, which could potentially reduce delirium, improve patient comfort, and support both patients and their caregivers during a stressful experience.

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Citation

Haimovich A, Jansen N, Nessen S, Yoon S, Mulqueen S, Maclean K, et al.. (2026). Co-Design of a Sleep Improvement Intervention for Persons Living With Dementia Boarding in the Emergency Department.. Academic emergency medicine : official journal of the Society for Academic Emergency Medicine. https://doi.org/10.1111/acem.70274