Cardiovascular

Development and evaluation of a family-based graphical tool for longitudinal monitoring of poststroke sequelae.

TL;DR

The FOLLOW color-coded graphic tool is effective for monthly monitoring of poststroke sequelae when completed by family members or caregivers, though it is less reliable when completed by patients themselves.

Key Findings

The study developed FOLLOW (Family Observation of Limits and Learning on Well-being), a color-coded visual graphic for monthly assessment of poststroke sequelae by nonprofessionals.

  • Colors indicate status: red for no improvement, yellow for stability, and green for improvement.
  • The tool is designed for intuitive understanding without specialized training.
  • It covers seven domains: motor independence, sleep patterns, cognition and language, family quality of life, patient quality of life, fatigue, and emotional state.

Proficiency in completing the tool differed significantly across the three user groups.

  • Success rates were 94.1% for family caregivers, 100.0% for healthcare professionals, and 69.2% for poststroke individuals (p = 0.008).
  • The study included 51 patients and assessed usability and proficiency among family caregivers, healthcare professionals, and poststroke individuals.

Poststroke patients completing the tool themselves had the lowest success rate, indicating lower reliability for patient self-completion.

  • Patient success rate was 69.2%, compared with 94.1% for caregivers and 100.0% for professionals.
  • The authors conclude the tool is less reliable when completed by patients themselves.

The graphic was easily interpretable by both caregivers and healthcare professionals.

  • The abstract reports that the graphic proved easily interpretable for these two groups.
  • The color-coded design was intended to allow understanding without specialized training.

The authors conclude that FOLLOW provides a practical longitudinal overview of the patient's home environment and clinical needs and can serve as a complementary monitoring aid.

  • It is proposed to enable early identification of complications and facilitate prompt intervention.
  • It is presented as an effective tool when completed by family members or caregivers.

What This Means

This study tested a simple color-coded chart called FOLLOW that lets families track how a stroke survivor is doing at home each month. It covers seven areas: movement and independence, sleep, thinking and language, fatigue, emotional state, and quality of life for both the patient and the family. Red means no improvement, yellow means stable, and green means improvement. The aim is to give patients and families a more active role in monitoring recovery, rather than leaving information solely to healthcare professionals. The researchers had family caregivers, healthcare professionals, and stroke survivors complete the tool (51 patients were included). Caregivers filled it out successfully 94.1% of the time and professionals 100% of the time, while stroke survivors succeeded 69.2% of the time, a statistically significant difference. Caregivers and professionals also found the chart easy to interpret. This research suggests that a simple graphical tool may help caregivers keep a regular record of a stroke survivor's progress and potentially help flag problems early. It also suggests that stroke survivors themselves may have more difficulty completing it accurately, so caregiver input may be more reliable. The tool is described as a complement to, not a replacement for, professional care.

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Citation

Oliveira M, Policarpo P, Malheiros J, Nicolato A, Ferrarez C, Avellar L. (2026). Development and evaluation of a family-based graphical tool for longitudinal monitoring of poststroke sequelae.. Arquivos de neuro-psiquiatria. https://doi.org/10.1055/s-0046-1829168