Mental Health

Exploring COPD Participants' Experiences in a Comprehensive Telewellness Program within a Mixed-Disability Cohort: A Qualitative Study.

TL;DR

A generic, 8-week telewellness program designed for individuals with mobility limitations was acceptable and beneficial for individuals with COPD, with participants reporting improvements in motivation, confidence in physical activity, emotional regulation, and nutrition awareness.

Key Findings

Participants with COPD reported improvements in motivation and confidence in physical activity following the 8-week MENTOR telewellness program.

  • 15 participants completed in-depth semi-structured interviews after completing the program
  • The MENTOR program stands for mindfulness, exercise and nutrition to optimize resilience
  • Improvements in motivation and confidence in physical activity were among the primary themes identified from thematic analysis
  • Braun and Clarke's six-step thematic analysis was used to analyze interview transcripts
  • Twelve primary themes were identified in total

Participants reported improvements in emotional regulation and nutrition awareness after completing the telewellness program.

  • Emotional regulation and nutrition awareness were identified as distinct themes among the 12 primary themes
  • The program's holistic nature was specifically valued by participants
  • Participants emphasized the need for tailored nutrition guidance as a recommendation for program enhancement
  • The program addressed mindfulness, exercise, and nutrition as integrated components

The group-based format of the telewellness program reduced social isolation and fostered peer support among COPD participants.

  • Reduction of isolation and peer support emerged as a primary theme from qualitative analysis
  • The program was designed as a group-based telewellness format
  • This finding was identified through semi-structured interviews with n=15 participants who completed the program
  • Social support was also identified as a factor influencing program engagement

Program engagement among COPD participants was influenced by multiple personal and contextual factors including symptom burden, comorbidities, home environment, social support, and digital literacy.

  • Barriers and facilitators were examined across five GRAIDs framework domains: built environment and community context, service delivery, instructional strategies, equipment and technology use, and policy factors
  • GRAIDs refers to Guidelines, Recommendations, and Adaptations Including Disability framework
  • Symptom burden and comorbidities were identified as specific barriers to engagement
  • Digital literacy was identified as a contextual factor influencing participation
  • Home environment and social support were also noted as influencing engagement

Participants valued specific instructional and technological features of the telewellness program, including supportive instructors, multimodal instructions, adaptive exercise programming, and a user-friendly telehealth platform.

  • Multimodal instructions included verbal, visual, written summaries, and live demonstrations
  • Adaptive exercise programming was specifically noted as a valued program feature
  • A user-friendly telehealth platform was identified as a facilitator of engagement
  • These features were identified as facilitators within the instructional strategies and equipment and technology use domains of the GRAIDs framework

Participants recommended tailored nutrition guidance, technical training for telehealth platform and equipment use, and long-term access to program resources as enhancements to telewellness models for COPD.

  • Three key recommendation categories were identified from participant interviews
  • Tailored nutrition guidance was emphasized given that the MENTOR program provided generic nutrition content
  • Technical training specifically for telehealth platform and equipment use was recommended, suggesting digital literacy was a barrier
  • Long-term access to program resources was requested, suggesting the 8-week duration may be insufficient for sustained benefit

A generic telewellness program originally designed for individuals with mobility limitations was found to be acceptable and beneficial for individuals with COPD in a mixed-disability cohort.

  • The program was not designed specifically for COPD but for a broader mixed-disability population
  • n=15 COPD participants completed the program and participated in qualitative interviews
  • The study used in-depth semi-structured interviews as the primary data collection method
  • The program duration was 8 weeks
  • Acceptability and benefit were assessed qualitatively rather than through objective clinical measures

What This Means

This research suggests that people with COPD (a chronic lung disease) can benefit from participating in an online wellness program that was originally designed for people with various physical disabilities, not specifically for COPD. The study involved 15 people with COPD who completed an 8-week online group program called MENTOR, which combined mindfulness, exercise, and nutrition education. After completing the program, participants were interviewed in depth about their experiences. They reported feeling more motivated, more confident about exercising, better able to manage their emotions, and more aware of their nutrition habits. Importantly, the group-based online format helped reduce feelings of loneliness and allowed participants to support one another. The study also identified what helped and what got in the way of participating in the program. Things that helped included having supportive instructors, receiving instructions in multiple formats (verbal explanations, visual demonstrations, and written summaries), having exercises adapted to their abilities, and using an easy-to-navigate online platform. Challenges included managing COPD symptoms and other health conditions, limited familiarity with technology, and home environment factors. Participants suggested improvements such as more personalized nutrition advice, better training on how to use the technology, and the ability to continue accessing program materials after the 8 weeks ended. This research matters because access to pulmonary rehabilitation — a structured exercise and education program proven to help people with COPD — remains limited for many patients due to travel barriers, costs, and availability. This study suggests that generic online wellness programs designed for people with disabilities more broadly could be a practical and acceptable option for people with COPD, potentially expanding access to health-supporting programs. However, the study also highlights that some degree of customization for COPD-specific needs, particularly around nutrition and technology support, could make such programs even more effective.

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Citation

Arora P, Bhatt S, Rimmer J. (2026). Exploring COPD Participants' Experiences in a Comprehensive Telewellness Program within a Mixed-Disability Cohort: A Qualitative Study.. International journal of chronic obstructive pulmonary disease. https://doi.org/10.2147/COPD.S592692