Sleep

Insufficient sleep among parents of children with intellectual and/or developmental disabilities: Findings from the 2011-2018 National Health Interview Survey.

TL;DR

Parents of children with intellectual and/or developmental disabilities (IDD) are significantly more likely to experience insufficient sleep than parents of children without IDD (AOR = 1.20, 95% CI: 1.09-1.33), with the association most prominent among lower-income and lower-educated parents.

Key Findings

Parents of children with IDD had a significantly higher prevalence of insufficient sleep compared to parents of children without IDD.

  • 40.54% of parents of children with IDD reported insufficient sleep (<6 hours) compared to 34.50% of parents of children without IDD.
  • Adjusted odds ratio (AOR) = 1.20, 95% CI: 1.09–1.33, controlling for child and parent-level sociodemographic characteristics.
  • Analysis used multivariable logistic regression on nationally representative 2011–2018 National Health Interview Survey data.
  • Sample included parents of children with IDD (n = 3,378) and parents of children without IDD (n = 54,645).

This study provides the first nationally representative estimates of insufficient sleep among parents of children with IDD.

  • Prior research relied on small, condition-specific samples.
  • Data were drawn from eight years (2011–2018) of the National Health Interview Survey.
  • Insufficient sleep was defined as less than 6 hours per night versus 6 or more hours.

Higher income and college education were associated with a weaker or non-significant relationship between having a child with IDD and insufficient sleep.

  • Parents of children with IDD reporting high income were not significantly associated with insufficient sleep.
  • Parents of children with IDD reporting a college degree were also not significantly associated with insufficient sleep.
  • The association between parenting a child with IDD and insufficient sleep was prominent among adults with lower income and lower educational attainment.
  • These findings suggest socioeconomic resources may buffer the sleep-disrupting effects of caregiving for a child with IDD.

Targeted sleep health interventions are recommended for low-income and low-education families of children with IDD to prevent adverse health outcomes.

  • Authors note that 'targeted efforts to improve sleep health among low-income and low-education families may help prevent adverse health outcomes in this population.'
  • The study underscores the need for interventions that specifically address families with fewer socioeconomic resources.
  • Parents of children with IDD already face greater health risks as a group.

What This Means

This research suggests that parents who care for children with intellectual and/or developmental disabilities (IDD) — such as autism, Down syndrome, or cerebral palsy — are significantly more likely to get less than 6 hours of sleep per night compared to parents of children without these conditions. Using a large, nationally representative survey of over 58,000 parents collected between 2011 and 2018, the researchers found that about 40% of parents of children with IDD reported insufficient sleep, compared to about 34% of other parents. After accounting for other factors like age, income, and education, parents of children with IDD were still 20% more likely to report not getting enough sleep. Importantly, this research suggests that not all parents of children with IDD are equally affected. Parents with higher incomes or college degrees did not show a statistically significant increase in sleep problems, whereas parents with lower incomes and less education showed the strongest association with insufficient sleep. This points to the role of socioeconomic resources — such as access to respite care, support services, or flexible work schedules — in buffering the sleep challenges that come with caregiving. This matters because chronic insufficient sleep is linked to a wide range of health problems, including cardiovascular disease, mental health conditions, and reduced immune function. Since parents of children with IDD already face elevated health risks, sleep deprivation may compound these challenges. The findings highlight the need for sleep health programs and support services that are specifically designed to reach families with fewer economic resources who are caring for children with disabilities.

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Citation

Lee J, Datta B, Benevides T. (2026). Insufficient sleep among parents of children with intellectual and/or developmental disabilities: Findings from the 2011-2018 National Health Interview Survey.. Research in developmental disabilities. https://doi.org/10.1016/j.ridd.2026.105258