Co-design workshops with children with chronic health conditions and their parents identified five interrelated themes that directly informed the development of a structured, family-centred Move to Improve protocol for hospital-based physical activity support.
Key Findings
Results
Five interrelated themes were identified from co-design workshops with children with chronic health conditions and their parents.
Themes highlighted the importance of family-led and goal-oriented approaches, individualised programme design, enjoyment, confidence building, and support for transition to community-based physical activity.
Data were analysed using reflexive thematic analysis.
Four online co-design workshops were conducted using a participatory and collaborative approach.
Participants included children living with chronic health conditions and their parents.
Results
The co-design process informed the development of a structured protocol incorporating evidence-based strategies aligned with families' priorities.
Strategies included goal setting at the start of the programme and goal review at the end of the programme.
Additional strategies included skill building and education on self-management of the condition across the duration of the programme.
The protocol was developed for the Move to Improve clinical service at Perth Children's Hospital.
The protocol is described as 'a clinically relevant and scalable model for supporting physical activity participation among children with chronic health conditions within hospital-based services.'
Results
Family-centred and tailored programme design was identified as essential to support sustained engagement in physical activity among children with chronic health conditions.
Findings 'underscore the need for family-centred and tailored programmes that support sustained engagement in physical activity.'
Family-led approaches and individualised programme design were among the five key themes identified.
Children and parents' input 'directly informed and shaped key elements of the Move to Improve protocol, including programme structure, content and delivery strategies.'
Results
Support for transition to community-based physical activity was identified as an important component of the programme.
Transition support was one of five interrelated themes identified through reflexive thematic analysis.
The programme was designed as a hospital-based service at Perth Children's Hospital, with community transition as an explicit programme goal.
The protocol addresses the need to move children from hospital-based to community-based physical activity participation.
Background
Physical activity programmes for children with chronic health conditions must be tailored to their specific needs to support participation.
Physical activity can support both physical and mental health among children living with chronic health conditions.
The study was motivated by the need for programmes tailored to the specific needs of this population.
An online co-design methodology was chosen to engage children with chronic health conditions and their parents in programme development.
Sivaramakrishnan H, Jones A, Long T, Naylor L, Valentine J, Martin L, et al.. (2026). Move to Improve: Co-Designing a Hospital-Based Physical Activity Program for Children With Chronic Health Conditions.. Health expectations : an international journal of public participation in health care and health policy. https://doi.org/10.1111/hex.70628