Hormone Therapy

Prevalence and severity of fatigue in treated hypothyroidism: results of a UK survey.

TL;DR

Fatigue in treated hypothyroidism is very common, with 89% of respondents fulfilling criteria for abnormal fatigue, and FACIT-F scores comparable or worse than those recorded for many other chronic conditions.

Key Findings

The vast majority of treated hypothyroidism patients surveyed met criteria for abnormal fatigue.

  • 89% of respondents fulfilled criteria for abnormal fatigue on the FACIT-F scale.
  • The mean fatigue score on the FACIT-F scale was 20.5 (SD: 10.5).
  • Total survey responses were 1,334, of which 1,251 were complete, unique, and from patients with primary hypothyroidism/Hashimoto thyroiditis taking thyroid hormone replacements.
  • 98% of respondents were women and the mean duration of treatment was 10.8 years (SD: 9.74).

FACIT-F fatigue scores in treated hypothyroidism were comparable or worse than those recorded for many other chronic conditions.

  • Mean FACIT-F score was 20.5 (SD: 10.5) in this cohort.
  • The authors state scores are 'comparable or worse than those recorded for many other chronic conditions.'
  • The FACIT-F scale was distributed via two UK patient support organisations: the British Thyroid Foundation (BTF) and The Thyroid Trust (TTT).

Fatigue scores were not significantly different across demographic or treatment subgroups.

  • Fatigue scores were not significantly different between respondents of different ages, gender, treatment type, or treatment duration.
  • This suggests fatigue is pervasive across the treated hypothyroid population regardless of how or how long they are treated.

FACIT-F fatigue scores were positively correlated with self-declared overall health state.

  • Pearson r = 0.576, P < 0.001 for the correlation between FACIT-F scores and self-declared overall health state.
  • This indicates that worse fatigue was associated with worse self-reported overall health.

The survey population was predominantly female with a long average duration of thyroid hormone treatment.

  • 98% of respondents were women.
  • Mean duration of treatment was 10.8 years (SD: 9.74).
  • 1,251 responses were complete, unique, and from patients with primary hypothyroidism/Hashimoto thyroiditis taking thyroid hormone replacements.
  • The survey was distributed online by two UK patient support organisations.

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Citation

Grixti L, Fisher H, Priestley J, McMullan C, Woollven A, Perros P, et al.. (2025). Prevalence and severity of fatigue in treated hypothyroidism: results of a UK survey.. European thyroid journal. https://doi.org/10.1530/ETJ-25-0044